Tales of an iPad

Incredible… it is all I can think of saying…

Hospice Matters

by Susan Anderson, HPCCR Social Worker

Editor’s Note: A couple of years ago, a social worker at HPCCR found that she could get many of her formerly unresponsive dementia patients to engage with her if she brought her iPad to their visits.  And just like that, an entire organizational program was created around using iPads with dementia patients.  Realizing both the success and the potential of the program, what quickly followed was an effort to raise money to purchase iPads for all HPCCR social workers.  While many of them are fortunate to have one, there are still others — like Susan Anderson — who share one with another social worker.  Our fundraising efforts continue; if you are interested in learning more about supporting this worthwhile program, visit the dementia care page on our website, or contact our Development Department at 704.375.0100.  Meanwhile, let Susan’s stories below awe and inspire you! 

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Punctuation malfunction in my brain and my increasing fear of commas.

Before I forget...

There are days when I notice my Alzheimer’s seems to be a bit worse and try to remember to record it for my Alzheimer’s Journey.

So, I will get an apology out the way first – sorry if my grammar and punctuation is all over the place but today my brain cells have gone on strike.

Cats woke us up extremely early at 6.30am – little darlings (smiling through clenched teeth :))) ), and I settled in my chair with my coffee to start reading a new book.

Right from the start I found I couldn’t understand the sentence because those pesky little tadpole commas seemed to be in the wrong place.  I read the first paragraph again slowly but it really did not make much difference.  As you know a comma in the incorrect place can put a totally different meaning on sentence but today for me, every comma…

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Namibia’s First Dementia Friendly Shop

During my meeting with Verena, I learned quite a bit, but the most important concept that I picked up was not to create ‘dementia bubbles’ for people with dementia. What this entails is not to create a modern way of caring for people with dementia somewhere that is out of sight and out of mind from our daily ‘normal’ lives. She told me about dementia friendly societies where people with dementia are still part of their normal societies.

Here today, Gone today

A story… from a person with dementia’s perspective….

play-grand

artworks-000048695323-7w1r3i-original

I awaken to the light, the sun coming through the window. Happily drowsy, fresh from a good nights sleep, I celebrate morning. It’s morning, at last and I get to go sledding with my sister. Momma said we could last night as we watched the snow falling furiously like there’s no tomorrow.

“Mae, wake up” I whisper before turning towards her bed. “They have cancelled school and we get to go sledding,” I say, hardly able to contain my excitement. But, something is strangely different.  I do not see her bed. An unfamiliar armoire looms where her bed should be. I’m confused. How did her bed simply go away? Where did this ugly piece of furniture come from? Where did Mae’s bed go? Where did Mae go?

“Mae,” I yell. But there is still no answer. “Mae!”

It suddenly hits me.  “My God, this isn’t even our room,”  What is this…

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NightSide – Michael Curren and Dr. Rudy Tanzi Are Answering Questions On Alzheimer’s

Don’t miss this!

CBS Boston

BOSTON (CBS) – Alzheimer’s disease affects over 5 million people in this country. Many people know someone diagnosed with this disease, and have seen the devastating effects firsthand. While Alzheimer’s has no cure, medical research has been making huge strides in our understanding of the disease, as well as what we can do to treat it. Michael Curren and Dr. Rudy Tanzi, both with the Cure Alzheimer’s Fund, join NightSide to talk about what we know about Alzheimer’s, what can be done to treat it, and to answer any questions you may have about this terrible disease.

Origninally broadcast July 14th, 2014.

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Lifestyle choices can cut Alzheimer toll, says study

Our lifestyles may not seem important now when we think of our old age – that far far future that is inevitable. But somehow I think it might just be important to start thinking of the now to prepare myself for those days!

Peace and Freedom

Volunteers from the 'Kissing it Better' charity read poems and recite songs on October 29 2013, to residents of a retirement home in Stratford upon Avon who have been diagnosed with dementiaVolunteers from the 'Kissing it Better' charity read poems and recite songs on October 29 2013, to residents of a retirement home in Stratford upon Avon who have been diagnosed with dementia

Volunteers from the ‘Kissing it Better’ charity read poems and recite songs on October 29 2013, to residents of a retirement home in Stratford upon Avon who have been diagnosed with dementiaVolunteers from the ‘Kissing it Better’ charity read poems and recite songs on October 29 2013, to residents of a retirement home in Stratford upon Avon who have been diagnosed with dementia

Millions of cases of Alzheimer’s could be prevented by altering lifestyle habits which increase risk of the tragic memory-robbing disease, scientists said on Monday.

Alzheimer’s is an age-related brain condition that experts suspect is influenced by both genes and the environment.

The population boom and longer lifespans mean that more than 106 million people will be living with Alzheimer?s by 2050 compared with 30 million in 2010, according to predictions.

The study, led by Carol Brayne, a professor of public health at at the University of Cambridge…

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Pampering

It is the little things that count!

It's Easy to Forget

pamper1 After a morning at the salon.

It’s amazing how a little bit of pampering can go a long way in helping life seem just a bit more normal. While I’ve written about this topic before I think it deserves a “redo” as I was reminded again this morning of its importance to Mom’s overall wellbeing.

Mom was never a slave to fashion or trends but feeling stylish and pretty has always been important to her.  Pictures from her youth are certainly evidence that she liked to “make an effort” as they say.  I’m sure she probably turned more than a few heads in her time.  And I will forever remember her morning routine in the bathroom before heading out into the world or before going out for an evening with Dad. Let’s just say that it was a relatively lengthy process – I can still hear my Dad worrying that they wouldn’t get where they…

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Man With Alzheimer’s Proves That Even If The Mind Forgets, ‘The Heart Remembers’

We so often think that people with Alzheimer's forget everything and that they forget us, their loved ones. This post on the Huffington Post shows us that we might just be wrong... Melvyn Amrine, of Little Rock, Ark., may not remember the details of his life since his Alzheimer's diagnosis, but he recently proved that … Continue reading Man With Alzheimer’s Proves That Even If The Mind Forgets, ‘The Heart Remembers’